I have been writing a bit about my clinical trial here but have not updated in a while. I decided, after careful thought and prayer, to sign up for the Pallas clinical trial back in August. I had just completed all of my "treatment" and was now down to going to see doctors once every 6 months but with surgeon and oncologist, that wound up to be every 4 visits a year as I would go in May and November to oncology and June and December to surgeon. Oh and in between those dates, I go in for my Lupron shot every 3 months, too so that is usually February, May, August, November.
I completed chemotherapy in May 2017 and my last radiation was July of 2017. I saw my oncologist once after chemotherapy only. She recommended at that visit that I consider joining the clinical trial for IMBRANCE (called the Pallas trial). I wrote all about my decision process and how the trial works regarding if you get the pills or not here --> lets-get-clinical-clinical.html and also here --> integrative-medicine-clinical-trials.html.
Getting cancer is almost like a part time job, really. There is so much to do but for many people, there is a "post treatment" funk that is common to all cancer patients, in my opinion. We go from seeing doctors and medical teams every 2 weeks for treatment and bloodwork and then we see everyone much much less. For me, this is not the case but it could have been if I decided not to do the clinical trial.
Yesterday, was my visit to get bloodwork and the next 3 cycles of drugs for the trial. Originally, I was going in every 2 weeks to do bloodwork and then at the 4 week visit picking up the month's pills (see more about that here - going-to-sloan-monthlyor-not-more-about-the-pallas-clinical-trial.html). I last was with oncology in October to do the bloodwork and then I was given the 3 cycles of pills. I am now on the 6th "cylce" or month of Pallas. I have been lucky in that I have not had any noticeable side effects. I do have low blood counts, which is normal for this class of drug.
The trial lasts a total of 24 months. I am happy to be doing my small part in helping test a new class of drug for breast cancer patients. It is an already FDA approved drug for those with stage 4 breast cancer. It is being studied to see if the same effects of cancer killing can be proven in earlier stages. I do this trial in addition to my hormone inhibitor and Lupron ovary shot.
I will update again on how it is going. Did you take part in a clinical trial? How did you find it? This is what I do in the time between.
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