When you get cancer, you find yourself in a world of doctor appointments and hospital visits and meds and the like. Once your active treatment is done, the world of follow up appointments begin. These are less frequent than anything you have done before. You are used to going in every 2 weeks (usually) for chemotherapy and sometimes more often that that before you get to chemotherapy.
I have already written about my decision to join the Pallas clinical trial lets-get-clinical-clinical.html and I have shared on my Instagram bits and pieces of the cycles - I am entering my 3rd cycle (read: month) of the clinical trial. The first 2 rounds went well, bloodwork has been, in my oncologist's words, "Perfect" and I am here today at Sloan to learn how I am doing before I start cycle 3.
There are tons of potential side effects for this drug but luckily, I have not experienced too many. I do find myself having joint pains if I do not drink enough water and take an aleve, if needed. The big issue is not drinking enough water, though, because as long as I stay hydrated, I am golden.
I had been told by the study team that at times the 3rd cycle is when things impact and dosages are lowered but I am hoping I can stay on my full dosage. That being said, I do not hae the control to make this so - I will just have to wait and see what happens.
The other perk of being on this study is that I can see my oncologist more often. This is both good and bad and is a big part of the reason why I want to work in NYC again life-is-change-or-how-i-decided-to-go-back-to-corporate-america.html.
Today's visit was fun - (yes, fun) - they asked me right away how my dad was doing AND asked me how I got so skinny. I mean, how lucky am I. It had been a month since my last visit and I was so happy they remembered. Then we spoke about how I got to my goal weight after last month telling them there was no way I could do it -- but I did it! With jeans, boots and the flimsy robe thing I was exactly 147 on the money.
I found out today I do not need to get back to see my oncologist until January! January! After going once a month to see oncologist and every 2 weeks in between for bloodwork this is like crazy!
I am confident that the fewer visits is a good thing. I can get moving on my life's plans. I have a Lupron shot to do in November then surgeon in late December, oncologist in late January.
If you have been considering the trial but thought it would be too many appointments, good news, it tapers off.
This is what I do in the time between.
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